At 4 months old, my little Granddaughter Evie, was diagnosed with Bilateral Retinoblastoma, or RB for short. A Genetic Cancer that first manifests in the eyes.
We were lucky, usually it does not get caught until 1-2 years of age. So for the last 6 months, Evie has been getting monthly treatments from Phoenix Children's Hospital of Chemo, with Monthly trips to Children's Los Angeles for Exams under Anesthesia to monitor the cancerous growth.
The initial diagnosis spotted the tumor in her right eye which measured 19.5mm Tall by 9mm wide...Pretty much the entire center section of her retina. The also later found smaller tumors in her left eye, which is when we learned she had the Bi-Lateral form of the cancer which carries very serious long term risks such as increased susceptibility to other cancers.
The Chemo has arrested the cancer in her left eye for now, and though it has stopped the growth of the cancer in her right eye...the core is still active and angry.
6 months ago, there was a 90% chance she would have to have her right eye removed, but we held off having it done since she had to have the Chemo for her left eye...As of Wednesday, her last exam, they are giving us a 50/50 chance she may keep her right eye. In a month, we will know what plan of action the specialist treatment team at CHLA suggests. There are other treatments, but we are going to have to weigh them heavily, as each treatment can cause Quality of Life issues down the road just to please ourselves now.
If you're curious, my sig contains her website which has more info about RB.
Thoughts, prayers, rituals, hell I can even offer up a few people for Sacrifice if that is your gig would be very welcome.
